Cure4CF Foundation is a registered non-profit charity organization, established in 2009, that works to find a cure for Cystic Fibrosis Airway Disease. The organization does not carry out research itself rather it funds the research projects undertaken to find cure for the disease. It is a volunteer organization that raises funds and gathers donation to fulfill its goal. A research team of the Women’s and Children’s Hospital managed to develop a potential cure for Cystic Fibrosis by gene therapy where it replaces the defective gene using gene transfer into the affected airway. This process needs to get materialized at the clinical level to cure the patients affected by Cystic Fibrosis. The Cure4CF Foundation is thus established to support and fast-track this gene therapy research effort to provide a lasting and effective treatment for Cystic Fibrosis Airway Disease.
Cystic Fibrosis Airway Disease
Cystic Fibrosis Airway Disease is a multi-organ disease that affects the lungs, liver, gut, pancreas and the reproductive tissues. It is the most common disease among the people with the Northern European origins and least common in Asians and Africans. It is a genetic disorder that affects one out of every 3000 newborns while 1 in 25 people are carriers of this defective gene. There is no cure for cystic fibrosis. The treatments available are only short lived and can only delay the process of lung destruction. The average age to which a person can live up to with this disease is 37 to 50. In about 90% of the cases of cystic fibrosis, lung problems are the cause of death.
The organization is committed to achieve its mission to find a cure for the Cystic Fibrosis by funding the research done for this purpose.
The aim is to generate adequate funds for the achievement of its mission so that relevant research could be carried out at ease without delay.
The Cure4CF Foundation does its best to fund and support the research work carried out for the Cystic Fibrosis. There are almost 3000 people living in Australia with Cystic Fibrosis and over 70,000 people are affected in the world. Many more are carriers of this disease. For the child to have Cystic Fibrosis, both the parents have to be the carriers of the defected gene. The cure of the disease lies in Gene Therapy that is currently being practiced. Other ways of cure of the disease are still under development and require research. The Foundation supports the work of the Adelaide CF Gene Therapy Research Group at Adelaide Women’s and Children’s Hospital, who is working to find a cure for Cystic Fibrosis. It helps them by providing financial support as well as in the purchase of vital therapeutic aids and equipment needed by the research team to advance the research process. It is supported by corporate sponsors and individuals. The organization then uses the funds by providing grants to hire new scientists and collaborate with the Cystic Fibrosis Research Centers around the world.