Who we are
The Pierre Robin Australia Inc is a charity organisation that has been formed to help cater for the needs of each and every child who has the Pierre Robin Sequence (PRS) and any of the accompanying health related disorders. The Pierre Robin Australia Inc is the only charity organisation that has tasked itself with providing supportive services for each and every child living in the whole of Australia and suffering from the Pierre Robin Syndrome/Sequence.
It is the vision of the Pierre Robin Australia Inc to see to it that each and every child suffering from the Pierre Robin Syndrome/Sequence and their families get provided with the appropriate support services that will help them to also live a normal life in the community.
It is the mission of the Pierre Robin Australia Inc to make the lives of children having the PRS more improved so that they can also make the best of their lives.
The Pierre Robin Australia Inc cherishes the following;
- Inclusive environment
What is the Pierre Robin Syndrome/Sequence?
The Pierre Robin Syndrome/Sequence is mainly used to refer to children who are born with three major disorders and these are;
- A lower jaw that has not properly developed
- A cleft palate
- An interference with the breathing of the child
These disorders come about through the improper development of the lower jaw which then leads to the inception of the remaining two disorders.
These three main things are what medical practitioners refer to as the Pierre Robin Syndrome/Sequence.
How can you get involved with the Pierre Robin Australia Inc?
Since the Pierre Robin Australia Inc is the only charity organisation that seeks to provide for all the needs of each and every child who has been diagnosed with the Pierre Robin Sequence, it has created a number of ways through which interested individuals and business organisations can also get on board and support it in rendering its valuable services to children suffering from PRS in Australia. Some of these supportive ways are;
To sponsor an event
This avenue allows interested individuals and corporations alike to provide financial and material resources needed by the Organisation in its bid to organise certain events in the community.
To volunteer for the Organisation
This also deals with the dedicating of one’s time and energy to the performance of certain activities or tasks that the Organisation needs to get done.
Fundraising for the Organisation
Through this way, the general public can also organise their own events in the communities that they live and use it to raise funds for the Pierre Robin Australia.
By becoming a member
This way allows individuals living in the community to attain membership status in the Organisation and take an active part in all that happens within it.
Buying of merchandise
This involves the purchasing of things from the store of the Pierre Robin Australia Inc.
How your support is used
Your support is used in the provision of the following services;
- The provision of appropriate information to the families of children diagnosed with PRS
- The provision of financial assistance to children with PRS and their families
- The provision of educational services aimed at creating awareness about the Pierre Robin Sequence and the services that the Organisation renders to community members